Truth of My Youth

Holidays have always been extremely hard for us. Having to pretend everything okay, smile and laugh, etc. Playing family is one of our least favorite things to do, however it seems its a must.
This year was hard, my husband is afraid of my mothers dog, we don’t blame him. She almost bit him, then almost bit me while trying to bite him… so I guess you could say she has really bad issues. I understand why she wanted her, however I don’t think it was the smartest idea too. When that dog bites someone, and I really mean when, it will either be someone understanding, or someone who will report them.

After Christmas has been… hard. We’re extremely restless, mostly due to the fact we finally get to go see Gail again next week. It’s been extremely hard not being able to see her since August… so everyone is pretty happy about it. We’re also glad to see our neurologist, he was extremely upset we were denied for Social Security, so he said our plan this year is to get a more defined diagnosis, so they can’t just assume I have diabetes, after they saw I’ve been tested for it a few times…
Our PCP does blood tests every other year to make sure my numbers are okay, she does this mostly because of the internal damage that was done when I was taking the wrong medications… and gained so much weight it did change my body dynamic. She said she wants to make sure I’m not in danger of anything, and to make sure my numbers and such are within tolerable ranges.
Plus my Neurologist does blood testing when he feels it’s needed to make sure my Depicote levels are where they need to be… and he tests for things that could effect my nerves, i.e. diabetes and such.
We’re pretty happy to finally go and get everything done. Having insurance and not having to pay a fortune for medications will be amazing… its been the hardest part of this whole process.

Things have also been starting to even out for us, we stopped trying to please the world, we have began to talk more about taking care of my body, trying to make sure we have things to do and people to talk with. It’s been a slow going process, but it’s starting to boil down to where I have only a few extremely close friends, and that’s all I really need. They will be there for me regardless, they want to see me, talk to me… be there for me. It’s nice, because after so many years of being the only person giving, it’s nice to be on the receiving end.
We all think this year will be better. So here’s to hoping.

See you all next year.

Smile In Your Sleep

The last few nights have been a bit hard. Emily has been extremely restless, getting up multiple times, etc.
Last night was the first night in 3 nights she was able to sleep, so I’m a bit relieved. We’re going to my mothers for Christmas eve, luckily it shouldn’t be to bad. Her and I had a weird heart to heart yesterday, mostly about her living conditions with my brother, and how he treats her, but we also had a nice heart to heart about us, my illnesses and such.
We both cried, it was… interesting.
I’m very proud of her, I just hope she can indeed put her foot down on how my brother treats her… despite everything I’ve been through, she’s still our mother, I want her to have quality of life.

Anyways, this will be extremely short, but I at least wanted to wish you all Happy Holidays, and I hope there wonderful ^_^

From us to you.

 

Let It Fall

We recently had a pretty amazing thunder storm, we stayed up from 12AM until almost 6AM just listening, and watching. It would pour, then let up, then pour some more… it was extremely tranquil.
However the aftermath of something so beautiful is the part the body begins to ache like crazy. Irritated nerve, messed up shoulder, etc…. it all deeply aches and acts up.

We had to go play family with our father today. It wasn’t as bad as we expected, we went out to lunch, public place. So we felt more comfortable then being alone with him. Emily still can’t be around when we go see father, so she hides in her room to avoid her doing something… well violent.
We recently tried joining a few support groups for DID, it’s hard to read through some of the posts and such because there systems are so dynamically different then ours, it almost feels like were the oddballs. However we have known longer about everything then most in these groups… so maybe it’s a mix of having more years to process and having a better flushed out system?
I have no clue honestly, I’m just speculating like a moron.

My service dog and I went off to a small outlet store to get new bed sheets, one of the cats decided to take commando kitty to a whole new level and ate a hole in the fitted sheet. While we were there, I noticed a lady stalking us. My dog must of known it made me uneasy, because he made sure to find a place where I couldn’t be snuck up on, and he watched the only entry way into the isle. I was looking at the bed sheets and managed to find some. She seemed to vanish, so we walked to the kitchen isle and got some cake pans (I needed real ones to try and make cheesecake). With everything, we walked up to the front. We then where ambushed by the lady…
She asked me why someone so young needed a service dog, how I didn’t look disabled, and how she called the police already, etc etc… I started to have a panic attack and my switch was so quick, the store manager told me later I dropped to the floor sobbing, saying that I would be a good girl, and not to hurt me again.
The lady was floored by this, my service dog did what he was trained to do for Rina, which is to curl around her, nudging her face to help her come to and realize the flashbacks where just flashbacks, and no one was going to hurt her.
When the police arrived they arrested the lady for interfering with a service animal, and public harassment. I guess the store wanted to press charges… Rina didn’t even understand them. I was gone for about an hour and a half, the manager was pretty good about it, she thought is was all part of my PTSD… probably better that way.

I really don’t understand… I have letters from both my psychologist, psychiatrist and scripts+letters from my Neurologist and PCP. I did Good K-9 Citizenship and Public Access testing and passed… I have the documentation for it. He has the vest, I have a MyID bracelet now with everything. I even carry a medication list and a ‘In Case Of Emergency’ paper in my wallet…. I did everything I legally am suppose to do. I have the dignosis’s… I got 4 doctor approvals for him…. and everyone just acts like every service dog is fake now…. we know why, people have began to abuse the system more and more. However assuming is what causes flares, panic attacks, switching, medical issues, etc….
Just let the dog do his damn job -_-

Anyways…

Duality

Apologies, the last few days or weeks have been… annoying to be honest.
Without insurance, it’s hard to get the migraine medication that helps us survive… so we were pretty messed up for the last 3 days.

Today we finally caved after urging from the husband to send an update message to our neurologist. The spasms are getting longer, more painful. The deep aching is much more painful, causing me to collapse from pain verses just loosing feeling. It’s been really hard on the others, Vera and Una wish they knew what to do… I have the whole crew hovering around trying to make me feel better, it’s kind of funny.
We had two fainting spells, one in October and another one yesterday. I think it’s nothing, but Vera and Alice both wanted me to mention it to my Neurologist since it could be something…
My dyslexia is getting worse, I’m starting to have a harder time spelling words I have always been able too spell (thankfully with spellcheck, it’s easy to hide online). It’s extremely frustrating, so I figured mentioning it wouldn’t hurt either…

Sometimes I can’t help but press my eyes into my skull… the small throbbing is really starting to get on my nerves… and everyone knows it. Emily was the calm one for once a few days ago… I was sobbing, hitting my head on the wall because I had become so frustrated with being in pain I just snapped. She forced control and made me stop… it’s the first time I had ever seen her so calm… it was kind of shocking.
Alice and Rina are still having issues, Alice doesn’t like the migraines, it effects her work with memories and such, so she tends to get extremely upset. Rina had been hiding in her room, I think she’s to afraid to be around right now…
Xero had a meltdown and cleaned my husbands computer out, including his desk, drawers, etc…
Luckily my husband understood… or else it would of been a screaming match over it. Z has been keeping Xero occupied since then, so hopefully he can just… stay there for a while. Lucy is still sleeping through everything… makes me dread when she wakes up.
Rin is being watched… she was being bad I guess…
She let her bulimia take over… my Husband said he was able to get her to stop but… Rin is on room arrest right now.
Everything is just… messed up.

Today we all went with the Husband and 2 friends to see a movie, the new Star Wars one. It wasn’t bad, we all enjoyed it. I started to have extremely bad spasms down my right leg, so once the movie was over, I looked like an old woman as I hobbled out to a seat where a water fountain was. Even though I took my muscle relaxant… it didn’t help much.
My husband keeps getting called into work, Yesterday was the first full day off he had in over a week… it’s frustrating for me, I am home alone, trying to do house work without hurting myself; and I hardly ever get to see him. I guess I just get agitated about it, and I already feel useless for not being able to hold a job like I so desperately wish I could… however I guess one girl and her 9 brain siblings have a rather hard time with it -_-

I’m struggling with cutting again, I get those deep, deep urges that are almost impossible to resist… I’ve gotten to the point of taking cold showers to snap me back… it’s hard. I touch my scars, and remember exactly why it is there, what I did it for, and how… I just remember everything, and I hate every ounce of it.
That seething hatred, sorrow, pain, agony… all those dark emotions that where embedded into my body makes me ashamed… it makes me hate myself even more. I hate my body, I hate how the scars are visible everywhere. I can’t hide them all, and the ones people can see, know what they are, and judge me based on it…
Its hard… and painful. Drawing and painting my feelings have helped, but cutting became my drug… became my alcohol… I may have never done anything addictive, but cutting to me… it is addictive, and fighting it is hard, however not completely impossible.

anyways… my thoughts are just everywhere right now…
Sorry about that… kinda turned into a weird rant thing… haha.

Sometimes The Stars

Now that I have my medications back within my system, I have been able to sleep better, think a bit more clearly. I’ve been drawing much more lately, I’ve seemed to have gone back to my tribal drawing roots… I have improved rather well.

We’re all counting down the days to January… we all really want to go back and see Gail. Gail has requested we go twice a week for a time, mostly due to the fact I’ve sadly regressed a bit. She says it’s not my fault, we are the last first world developed country without nationwide health care… or socialized as some would call it. I wasn’t surprised, with the way people with mental health are treated within this country, and how uneducated people seem to be about it, I’m just… not shocked in the slightest.

I was out with my father and Merlin yesterday. With Merlin it seems easier to be around him… which is nice. Sadly because of my mothers dog, I can’t have him, thus only being able to be around her for at most 3 or 4 hours. We ran to the pharmacy that had his compression socks, and went to eat lunch. I laid out Merlin’s blanket (because I really didn’t think the floor was clean…) and he went under the table and laid down in it. He was quite, bothering no one.
We were approached by some teenagers, who started on and on about how I am the reason why service dogs are given a bad rap, and how he was a fake service dog because I didn’t ‘look sick’. My father started to get into it with them, and I was stuck in a booth… Merlin got up onto the booths seat, and laid himself over me, making a barrier from me and them. When one of the kids tried to touch me, he barked once.
The cops who came in for lunch, intervened, all 3 cops laughed at the teenagers claims and said “You see what he’s doing to his handler? That’s called blocking… you’re doing something that’s forcing the dog to feel it’s safer for him to be in between you and her. Just because you can’t see an illness doesn’t mean it’s not there.”

That was the most amazing thing I had heard in a while. another cop was talking to my dad who, of course, was all fired up. and the female cop sat with me outside while my panic attack set in. Thanks to Merlin, I avoided switching. She saw pretty quickly I had PTSD of some kind because of the after effects… she said her husband has PTSD from his childhood, not the military, and has a service dog as well, so she understood what I was going through. It made me feel more at ease. We sat outside until I was calm enough to go back inside. When I did, Merlin was body blocking, placing himself in between me and the 3 teenagers. They apologized, the cops explained they were going to take them to the station and have there parents come get them there. They wanted to know if I wanted to press charges, I said no. There was no point too, from what I could hear when the teens called there parents, none where pleased with what they did. I think that’s enough.

When I got home, I had to crash, the stress seemed to drain everything I had. Emily wanted a piece, Una wanted a piece, Xero freaked out, Alice and Rina where being comforted by Vera… Z wanted a piece, Rin was crying, Lucy didn’t seem to care…. it’s like a giant mess when things like this happen. I didn’t tell my husband yet, mostly because he’ll get angry, but also he acts like he should of been there; however honestly I doubt him being there would of changed much. My dad called me about 40 times to make sure I was okay after I got home, so it’s one of those things to where more people there might of made it worse…
Sometimes I wish people here were more educated about service dogs, mental health… just… everything. Sometimes I wonder if moving to a different country would be better, but I can’t really just pack up and go. With how our country is right now, getting a passport costs an arm and a leg, then trying to leave costs half your soul.
maybe I should carry a squirt bottle and spray people when they say stupid things, then say ‘Bad! Bad human!’
Ahhhh if only…

Swallow

Sorry, mostly this is going to be a rant…

So last Thursday I called and left a message for my psychiatrist, explaining I will need re-fills on my anti-depressant/anxiety and my med that helps me NOT have night terrors. Friday I called again trying to make sure they filled it, but I never heard back…
This past weekend was hell.

My anxiety and depression where all over the place, and I barely slept more then 2 hours each night due to the night terrors. My husband called off work to stay with me due to this… I was hiding in the corner apparently. I assume it was Rina.
Basically for 5 days I was dissociated to the point I honestly can’t remember any of it if at all. Monday I received a phone call from the psychiatrist’s office finally, however instead of the doctor, it was his secretary.
Now… this is the same lady who tried to tell me I wasn’t allowed to have my service dog within the office due to allergies…. and later got yelled at BY my doctor because my psychologist called and yelled at him…. She doesn’t like me very much.
Anyways, she tells me they have my med requests, but the doctor won’t fill them because I was due for an appointment. I explained I already talked with him about everything, and he is aware I don’t have insurance coverage until January.
She sighed and said if I can’t come in, I won’t be getting my medications and would be dismissed from the practice, I asked to speak with my doctor, she refused.

I called Gail sobbing. I was right at the tipping point of all hell breaking lose on top of the lack of sleep. Gail managed to talk me down, and said she would call and see what she says. It took about an hourish, but she called back and explained that they wouldn’t let her talk to him, but she said that she would call the direct line then. Apparently that freaked out the secretary I assume.
My doctor had no idea I had requests for medications, and was rather shocked with the fact I was being denied a right to speak with my doctor about medications. Same day I got my medications, I already set an appointment for the first week in January…

I really hate people….
Anyways, done with ,my rant.