Heavy

Apologies… I’ve been extremely busy with doctors and such.

We finally saw Gail for the first time in almost 6 months, the moment she hugged us, we sobbed. It was one of the best relieved feelings I had, I sadly convinced myself she would abandon us, but everyone kept reassuring me she would never do that.
We didn’t get into to much, we mostly talked about how the last few months have been extremely difficult. The breakdowns, the medication struggle, etc.
I think it was just nice we all got to speak with her.

My health has been up and down sadly, somedays I feel great… but others I feel like I’m trying to carry a bolder. I know part of the issue is my depression, however my body physically feels like garbage as well.
I feel terrible… like I’m really a worthless wife. I can’t do dishes or laundry… or even clean when I feel like that. Instead I can only lay in the bedroom and try not to cry from the pain.
My husband asks me to do things, and I honestly try… I really do. However it isn’t always done, I struggle sometimes. Someday’s I think he understands… others I think he understands, but is still frustrated with me.
I feel like a worthless wife… and a terrible house keeper, even Xero is effected by how I’ve been feeling… so he’s been struggling to help as well. When the body is messed up, everyone feels its effects… not just me.

Last night I couldn’t fall asleep due to a sharp pain in my left side… no it wasn’t near my heart, it was either my stomach or another organ around there… no matter how I laid, it stung. Friday and Saturday night it felt like mini stakes where being driven into my lungs…. so even when I got up to help my mother on Saturday, she even knew I was exhausted.
I’ve been so tired, and in so much discomfort that I honestly can’t believe how long I’ve lived feeling like that… guess I’m one hell of a survivor.
I refuse to go to the hospital or anything, it’s to expensive, plus I’ve pretty sure they would think I’m faking it, or laugh at me… one or the other.
I got my letter to go get my next mammogram, I have to wait until I see my primary care doctor to really get that order.
I’ve debated heavily on seeing my PCP… but I don’t know if that would be smart. It’s hard to get in and see her… plus I’m pretty sure her assistant’s would laugh at me anyways.

It’s sad that people like us, with chronic pain, have to hide it from professionals… especially since they always think we’re either faking or trying to abuse drugs. My… what our healthcare system has dissolved into… I’m lucky enough to have a neurologist who can look at me, and know for a fact 10000000%, I can’t be faking what I’m feeling… he said he’s been a neurologist for a long time, so it’s easy to tell those who fake it, and those who genuinely feel like shit.
Plus if I can, I avoid addictive substances… the fact I agreed to Soma was because I didn’t really have any good alternatives for my muscle spasms… I don’t even take it as much as most would. If it’s a spasm I can withstand I will, there’s no point in wasting medication, because when it gets to the point I have the horrible dibilating ones… I want to feel assured I have the pills.

My lower back is on fire today… hopefully I can find some kind of reprieve soon… I’m just tired of feeling heavy, and feeling like I’m breaking apart.

Nervous Breakdown

My new year has been extremely busy. I saw my neurologist, I was put on a new muscle relaxant, had my Gabapentin (or however it’s spelled) upped, and got my NCS/EMG tests scheduled. Then I saw my psychiatrist, nothing really changed there, same day I got my NCS/EMG of my arms.
I have regained and healed quite a bit in my right arm… it makes me extremely relieved. Z has been assisting me in building a standing garden. He’s good with tools and such… so I trust him more then myself with a drill, haha.
However today was… not good.

So I’m sore in general from not only helping my mom clean her floor, but Z tends to be stronger somehow then me, so lifting and moving things didn’t help. Surprisingly he asked my husband for help, though he was pretty course… which is just how he is, my husband said he wasn’t to bad. We’re still working in co-consciousness and how it works… I could hear some of the conversation, but it’s a work in progress.
We were taking a break, so Z went and relaxed in his room. I was enjoying the weather and birds when my whole body just jolted.
I could hear this little girl screaming, she kept saying ‘I’m sorry mommy’ ‘Please mommy, I won’t do it again’ ‘Please no more mommy’ and in between her cries you could hear the slaps. They had to be down the block from me, but the body memories were starting. Alice was doing what she could to close the flood gates, but it’s not so simple.
I came inside, and quickly just went into the bedroom. My whole body just… twitches, it’s the weirdest sensation. You become sensitive to every little touch. Alice, Una and Vera all were having a hard time plugging holes and trying to keep it from happening. However sadly, the flood gates opened.
I kept remembering how I said similar things to my father, and I use to beg my mother to save me… however she was so numbed out that I doubt she even realized it. I started to beg and cry….
My husband heard me yelling, so when he came in and tried to touch me, I screamed at him not too. So he put the blanket over me and kept telling me he was there with me, and I was safe with him. He’s the only person on this planet that can find me within the chaos. His voice is like a beacon for me, if I get lost, he always makes sure I can find my way back.

Alice took that chance and managed to stop the body memories, Una and Vera where doing damage control. I ended up sobbing, it took me a bit to explain what happened, he stopped me when he realized it was starting to trigger me again, and told me that I was safe here, and to try and remain in that moment with just him and I. He said I should take a break from the garden bed, I agreed. I ended up calming down more once he and I spoke with his parents. The fact they love me and accept the fact I have mental illness and physical issues… it’s more then I’ve had. My mother still doesn’t accept my DID fully, she keeps thinking if I calm down, I can just become better. My mother in law actually asked me about it, asked me about good DID books… she wants to understand… she wants to make that effort. Honestly it’s more then I deserve, though if I said that my husband would poke me.
I fell asleep after, it helped my muscle spasms and aching in my legs, however it’s not completely gone yet.

Honestly I just really can’t wait to have Gail back… she returns from her break on the 9th, then we can start making appointments again. She said it will be good to get me back in, sadly much of my progress has disintegrated, but she makes me feel confidant we’ll fix it in no time at all. She really seems to care, she told me if she retires, I would be one of the few she keeps… I don’t know if it’s because I’m that insane or she genuinely understands my abandonment/trust issues… we told her we were afraid she was going to leave us, because I had no insurance. However she quickly explained she wasn’t, and once I had it again, we’d have appointments again. She’s been reinforcing me about it every time we speak… so I guess it’s a good thing.
Besides my small nervous breakdown, I’ve just been extremely tired from running all over, helping my mother, and doing small things for myself. One thing I did promise myself this year was to try and take better care of Us… We all agreed on it, and we all think its a good promise to make.
We still have arguments over wardrobe selections, but sadly I fear that will be common until we get it more… figured out with Gail. Buying a bunch of new clothes just… why…

Anywho…

Truth of My Youth

Holidays have always been extremely hard for us. Having to pretend everything okay, smile and laugh, etc. Playing family is one of our least favorite things to do, however it seems its a must.
This year was hard, my husband is afraid of my mothers dog, we don’t blame him. She almost bit him, then almost bit me while trying to bite him… so I guess you could say she has really bad issues. I understand why she wanted her, however I don’t think it was the smartest idea too. When that dog bites someone, and I really mean when, it will either be someone understanding, or someone who will report them.

After Christmas has been… hard. We’re extremely restless, mostly due to the fact we finally get to go see Gail again next week. It’s been extremely hard not being able to see her since August… so everyone is pretty happy about it. We’re also glad to see our neurologist, he was extremely upset we were denied for Social Security, so he said our plan this year is to get a more defined diagnosis, so they can’t just assume I have diabetes, after they saw I’ve been tested for it a few times…
Our PCP does blood tests every other year to make sure my numbers are okay, she does this mostly because of the internal damage that was done when I was taking the wrong medications… and gained so much weight it did change my body dynamic. She said she wants to make sure I’m not in danger of anything, and to make sure my numbers and such are within tolerable ranges.
Plus my Neurologist does blood testing when he feels it’s needed to make sure my Depicote levels are where they need to be… and he tests for things that could effect my nerves, i.e. diabetes and such.
We’re pretty happy to finally go and get everything done. Having insurance and not having to pay a fortune for medications will be amazing… its been the hardest part of this whole process.

Things have also been starting to even out for us, we stopped trying to please the world, we have began to talk more about taking care of my body, trying to make sure we have things to do and people to talk with. It’s been a slow going process, but it’s starting to boil down to where I have only a few extremely close friends, and that’s all I really need. They will be there for me regardless, they want to see me, talk to me… be there for me. It’s nice, because after so many years of being the only person giving, it’s nice to be on the receiving end.
We all think this year will be better. So here’s to hoping.

See you all next year.

Duality

Apologies, the last few days or weeks have been… annoying to be honest.
Without insurance, it’s hard to get the migraine medication that helps us survive… so we were pretty messed up for the last 3 days.

Today we finally caved after urging from the husband to send an update message to our neurologist. The spasms are getting longer, more painful. The deep aching is much more painful, causing me to collapse from pain verses just loosing feeling. It’s been really hard on the others, Vera and Una wish they knew what to do… I have the whole crew hovering around trying to make me feel better, it’s kind of funny.
We had two fainting spells, one in October and another one yesterday. I think it’s nothing, but Vera and Alice both wanted me to mention it to my Neurologist since it could be something…
My dyslexia is getting worse, I’m starting to have a harder time spelling words I have always been able too spell (thankfully with spellcheck, it’s easy to hide online). It’s extremely frustrating, so I figured mentioning it wouldn’t hurt either…

Sometimes I can’t help but press my eyes into my skull… the small throbbing is really starting to get on my nerves… and everyone knows it. Emily was the calm one for once a few days ago… I was sobbing, hitting my head on the wall because I had become so frustrated with being in pain I just snapped. She forced control and made me stop… it’s the first time I had ever seen her so calm… it was kind of shocking.
Alice and Rina are still having issues, Alice doesn’t like the migraines, it effects her work with memories and such, so she tends to get extremely upset. Rina had been hiding in her room, I think she’s to afraid to be around right now…
Xero had a meltdown and cleaned my husbands computer out, including his desk, drawers, etc…
Luckily my husband understood… or else it would of been a screaming match over it. Z has been keeping Xero occupied since then, so hopefully he can just… stay there for a while. Lucy is still sleeping through everything… makes me dread when she wakes up.
Rin is being watched… she was being bad I guess…
She let her bulimia take over… my Husband said he was able to get her to stop but… Rin is on room arrest right now.
Everything is just… messed up.

Today we all went with the Husband and 2 friends to see a movie, the new Star Wars one. It wasn’t bad, we all enjoyed it. I started to have extremely bad spasms down my right leg, so once the movie was over, I looked like an old woman as I hobbled out to a seat where a water fountain was. Even though I took my muscle relaxant… it didn’t help much.
My husband keeps getting called into work, Yesterday was the first full day off he had in over a week… it’s frustrating for me, I am home alone, trying to do house work without hurting myself; and I hardly ever get to see him. I guess I just get agitated about it, and I already feel useless for not being able to hold a job like I so desperately wish I could… however I guess one girl and her 9 brain siblings have a rather hard time with it -_-

I’m struggling with cutting again, I get those deep, deep urges that are almost impossible to resist… I’ve gotten to the point of taking cold showers to snap me back… it’s hard. I touch my scars, and remember exactly why it is there, what I did it for, and how… I just remember everything, and I hate every ounce of it.
That seething hatred, sorrow, pain, agony… all those dark emotions that where embedded into my body makes me ashamed… it makes me hate myself even more. I hate my body, I hate how the scars are visible everywhere. I can’t hide them all, and the ones people can see, know what they are, and judge me based on it…
Its hard… and painful. Drawing and painting my feelings have helped, but cutting became my drug… became my alcohol… I may have never done anything addictive, but cutting to me… it is addictive, and fighting it is hard, however not completely impossible.

anyways… my thoughts are just everywhere right now…
Sorry about that… kinda turned into a weird rant thing… haha.

Swallow

Sorry, mostly this is going to be a rant…

So last Thursday I called and left a message for my psychiatrist, explaining I will need re-fills on my anti-depressant/anxiety and my med that helps me NOT have night terrors. Friday I called again trying to make sure they filled it, but I never heard back…
This past weekend was hell.

My anxiety and depression where all over the place, and I barely slept more then 2 hours each night due to the night terrors. My husband called off work to stay with me due to this… I was hiding in the corner apparently. I assume it was Rina.
Basically for 5 days I was dissociated to the point I honestly can’t remember any of it if at all. Monday I received a phone call from the psychiatrist’s office finally, however instead of the doctor, it was his secretary.
Now… this is the same lady who tried to tell me I wasn’t allowed to have my service dog within the office due to allergies…. and later got yelled at BY my doctor because my psychologist called and yelled at him…. She doesn’t like me very much.
Anyways, she tells me they have my med requests, but the doctor won’t fill them because I was due for an appointment. I explained I already talked with him about everything, and he is aware I don’t have insurance coverage until January.
She sighed and said if I can’t come in, I won’t be getting my medications and would be dismissed from the practice, I asked to speak with my doctor, she refused.

I called Gail sobbing. I was right at the tipping point of all hell breaking lose on top of the lack of sleep. Gail managed to talk me down, and said she would call and see what she says. It took about an hourish, but she called back and explained that they wouldn’t let her talk to him, but she said that she would call the direct line then. Apparently that freaked out the secretary I assume.
My doctor had no idea I had requests for medications, and was rather shocked with the fact I was being denied a right to speak with my doctor about medications. Same day I got my medications, I already set an appointment for the first week in January…

I really hate people….
Anyways, done with ,my rant.

Rx: Medicate

Recently I got into a fight with some internet idiots… they tried to say I needed to medicate better, then maybe I wouldn’t be struggling with my DID as much as I am.
Seriously?
Do you understand the depth of that statement? sigh… another rant incoming…

Dissociative Identity Disorder is a mental illness that has physically changed the way your neurons and other parts of your brain work, to the point of effecting the chemical input and outputs like most other mental illnesses… however, there compartmentalized, so what works for you may not work for an alter BECAUSE that persona is literally cut off from your side of the brain.
So basically it’s like an irrigation system, there are walls that block the incoming streams from going to certain areas and others that help guide it, etc.
When you flood your brain with anti depressants, it only will work for the parts of the brain that ALLOW it. For example, I am the only one who is effected by my anti-depressant; where as Xero is unaffected no matter how much you pump into me.
We had a similar issue when we were mistaken for having bi-polar and schizophrenia, the anti-psychotics and mood stabilizers where not only making me robotic, but it was agitating my alters to the point they and I where having control issues. I was switching so often and so much within a day that I can’t even remember 8 years…. 8 years of my life.
Emily tried to kill my husband on 5 separate occasions thinking he was one of our abusers. It was a giant mess of chaos and mayhem that honestly I have to listen to people tell me what happened and just agree because it wouldn’t be so far fetched.

I lost family, I lost my friends… I lost relationships I can never get back or apologize too. My life was destroyed until I turned 18, then I unmediated myself, and got on medications that didn’t cause loss of control, and only helped me. All I had left was my husband… even his friends tried to convince him to leave me.
No one comes forward to say ‘hey, I have DID.’ Due to the negative responses and being told you do nothing but lie. There are more of us out there then people realize, we all are just… sadly professionals at hiding. I was for years, until I found that I could no longer deny my alters, I embraced what I had, and slowly, we’re getting to the point of co-existing.

Anyways, I’m done ranting…

Thorns

Today we went and saw our mother person, it wasn’t as terrible as we originally thought it would be. She treated us to breakfast, and we got to discuss things.
Apparently after the Attorney General closed my case, a few things happened at Banner Health that made me feel a little bit more like I did do some damage.

The idiot from HR got fired, the same man who kept asking personal information, and claimed I could be a danger to the work environment…. then I guess my mother’s boss got chewed out as well by corporate for trying to get around there choice for me to have my service animal. She lied to me in the phone conversation, she never once went to infection control, so it explains why they couldn’t give me a real reason as to why I couldn’t bring my service animal.
My mother also said there was people from corporate within there department just casually asking questions. She said that a few transporters told them that they see the therapy dogs up in ICU all the time, same with the K9 unit. She also stated that there is a mandatory, yearly training for managers on ADA laws and Service Dog laws now…

Needless to say, I feel I really did do some kind of damage. It makes me feel a little bit more satisfied with the outcome of this whole ordeal. Finical compensation would of been nice, but I got what I primarily wanted… justice. I wanted that HR guy fired, I wish they fired my boss and his boss…. but I guess I’ll settle for the chew out.
It makes me realize corporate wasn’t to blame, which made me feel better as well. It was the actions of 3 corrupted people, not the people who my mother spoke so highly of. I don’t really need to tell you how happy Una was, Emily said it was about time hah.

I’m now waiting for the insurance company to send me my cards, then I can finally go back to my doctors. I’m close to just calling and getting the info they need, I haven’t seen my Neurologist in 3 months, or my Psychologist…. it’s sadly starting to take it’s toll on me. Also would be nice to have all that information for when I see my Psychiatrist the second week of November…
I also need to go speak with my PCP, though she said I should no longer be having a menstrual cycle, I still spot. She first thought it was me missing the medications, but now she’s concerned I just have an extremely thick uteran wall, which can be a good or bad thing depending on what she can find… but I can’t see her due to no insurance. I feel like we pay more for health insurance in the US then anything else… and due to the costs, people wait until there basically dying to see someone. Luckily I have decent insurance coming my way, but I can tell you for a fact, the basic health insurance they offer is 300$… and it doesn’t even cover MOST of my medications… let alone ANY kind of visits except my annuals.
Needless to say… I’m really excited to have health insurance again.